Resources

These resources cover important topics related to dementia support and services.

Financial Issues

This discusses common financial issues such as having to stop work, income protection, superannuation, and Centrelink.


Accessing Services

Tips on accessing support services and Commonwealth Government subsidised care.


Legal Issues

Decision-making, advocacy, Wills and Power of Attorney issues.


Brain Banking

Covers donation of brain tissue, and the role of the Victorian Brain Bank.


Driving and Dementia

Addresses the responsibilties of drivers and carers with respect to ongoing safe driving and testing of skills.


Employment and Income

Concerns about income are common. This covers when to talk to an employer, whether to cease work, vocational capacity assessments and work discrimination issues.


Carer Crisis Plans and FTD

If an emergency or crisis occurs (such as choking, severe falls, sudden changes in physical condition or behaviour, sleep disruption, incontinence, etc) this covers what resources are available and contacts.


Web Resources for FTD

Contains a list of useful and reputable websites (forums, language onset and progressive aphasia, MND, PSP, CBD information and FTD video links).


FTD Overview

Dr James Burrell, of the NeuRA Frontier research group, talks about the pathology and genetics of frontotemporal dementia.

FTD Genetics and Pathology

Professor John Hodges trained in medicine and psychiatry in London, Southampton and Oxford before gravitating to neurology and becoming enamoured by neuropsychology. In 1990, he was appointed a University Lecturer in Cambridge and in 1997 became MRC Professor of Behaviour Neurology.

FTD: Tragic loss, abiding hope

An 18-minute documentary that chronicles the lives of four families affected by frontotemporal degeneration (FTD).

Planning for hope

From co-producers Susan Grant, an FTD patient, and her caregiver Cindy Dilks, "Planning for Hope" captures some of the most brilliant and passionate researchers exploring early diagnoses for this rare disease. Frontotemporal Disease or Dementia (FTD) has been misdiagnosed along with other neurodegenerative diseases that cause dementia in young people in their 40s, at the peak of their careers and in the prime of their lives.