Helpful Resources
  • Financial Issues

    This discusses common financial issues such as having to stop work, income protection, superannuation, and Centrelink.

  • Accessing Services

    Tips on accessing support services and Commonwealth Government subsidised care.

  • Legal Issues

    Decision-making, advocacy, Wills and Power of Attorney issues.

  • Brain Banking

    Covers donation of brain tissue, and the role of the Victorian Brain Bank.

  • Driving and Dementia

    Addresses the responsibilties of drivers and carers with respect to ongoing safe driving and testing of skills.

  • Employment and Income

    Concerns about income are common. This covers when to talk to an employer, whether to cease work, vocational capacity assessments and work discrimination issues.

  • Carer Crisis Plans and FTD

    If an emergency or crisis occurs (such as choking, severe falls, sudden changes in physical condition or behaviour, sleep disruption, incontinence, etc) this covers what resources are available and contacts.

  • Web Resources for FTD

    Contains a list of useful and reputable websites (forums, language onset and progressive aphasia, MND, PSP, CBD information and FTD video links).

FTD Overview

By Prof John Hodges (Neura, NSW)

FTD Genetics and Pathology

By Dr James Burrell (Neura, NSW).

FTD: Tragic loss, abiding hope


Planning for hope


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